upclose image of the forest floor in the Pine Barrens, featuring fallen pine needles and a mushroom.

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Feb 1
2 min

Balance her between your eyes

It's hard to say how much time is left; it's always been hard. We didn't talk about it directly, but I know my mom didn't think she'd...

So, before you go Was there something I could've said To make your heart beat better?

Sara

Oct 18, 2021
1 min

alzheimer's

So, before you go Was there something I could've said To make your heart beat better?

Last week, I was pretty certain my mom was going to die. This shouldn't be a surprising revelation, especially not 16 years in to this...

Either way, I lose you in these silent days...It wasn't right, But it was right on time

Sara

Sep 15, 2021
2 min

alzheimer's

Either way, I lose you in these silent days...It wasn't right, But it was right on time

"To have faith is to hope." I found this photo of my mom recently while sorting my parents' house, attempting to preserve the lives they...

And I can read the promise In your mind To yourself again, that you will Play the strong one

Sara

Sep 13, 2021
2 min

alzheimer's

And I can read the promise In your mind To yourself again, that you will Play the strong one

Before the diagnosis, but not too far off from it, my senior year of college. Knowing what we know now, there were already signs that...

I sometimes wish I'd stayed inside my mother, Never to come out

Sara

Sep 6, 2021
1 min

alzheimer's

I sometimes wish I'd stayed inside my mother, Never to come out

Not much to say today; I just really miss you is all. #grievingdaughter #grieving #grief #griefsupport #griefjourney #endalz...

And it's the same face, Your heart keeps breaking in the same place

Sara

Aug 31, 2021
2 min

alzheimer's

And it's the same face, Your heart keeps breaking in the same place

"By locating our consciousness in only one biological oscillator, the brain, we have blinded ourselves to perceptions that have been...

Years of decay will make a mess of me, These rotted floor boards arch below my feet

Sara

Aug 31, 2021
2 min

alzheimer's

Years of decay will make a mess of me, These rotted floor boards arch below my feet

I guess I missed #nationalgriefawarenessday yesterday, or whenever it was. At least in the social media sense. These days I've been...

if you wanna show, then just let me know And I'll sing in your ear again

Sara

Apr 22, 2021
2 min

alzheimer's

if you wanna show, then just let me know And I'll sing in your ear again

Late-stage Alzheimer's is not easy to see, not easy to describe to someone who thinks this is just a disease about forgetting names or...

Previous NextDo you remember when we met?

Sara

Nov 10, 2020
1 min

Grief

Previous NextDo you remember when we met?

That’s the day I knew you were my pet. I want to tell you how much I love you. We’ve slipped out of the routine during the past few...

Don’t forget me, make it easy only just for a little while.

Sara

Oct 26, 2020
1 min

alzheimer's

Don’t forget me, make it easy only just for a little while.

You know I think about you, let me know you think about me, too I remember your good nature and wicked sense of humor. It was a special...

Sara

Oct 19, 2020
1 min

Grief

You Can Close Your Eyes

For our Season 2 opener, I spoke with Heather Paul, who is the assistant director of the Springboard Fellowship for Hillel International...

I saw that you were fading that you were leaving your own mind

Sara

Jul 31, 2020
2 min

Grief

I saw that you were fading that you were leaving your own mind

I gave you water just to soothe your failing heart, and take away the fear This was me, in my parents’ kitchen, before my senior prom...

You’ll say that it’s no big deal, But It's The Shake In Your Voice That Gives Away How You Feel.

Sara

Jun 2, 2020
1 min

Grief

You’ll say that it’s no big deal, But It's The Shake In Your Voice That Gives Away How You Feel.

I’ve been building a soundtrack for heartbreak over the past few days but can’t get past 3 songs and so I’ve just been listening to them...

Oh, I won't be afraid just as long as you stand, stand by me

Sara

Apr 15, 2020
1 min

Grief

Oh, I won't be afraid just as long as you stand, stand by me

I know the last several weeks have been crazy for everyone as we all are not only navigating this new normal, but also being confronted...

I’m back with scars to show, Back with the streets I know, Will never take me anywhere but here

Sara

Mar 1, 2020
1 min

Grief

I’m back with scars to show, Back with the streets I know, Will never take me anywhere but here

#Death and #birth is about so much more than the bookend events that bring us and take us from this world. It’s about our own living and...

Sara

Oct 17, 2019
1 min

Grief

This Little Light of Mine

It’s been hard to take photographs of myself recently, unable to avoid the effects the last 18 months have had on my face. The added...

And one day we will die, And our ashes will fly from the aeroplane over the sea

Sara

Sep 12, 2019
2 min

Grief

And one day we will die, And our ashes will fly from the aeroplane over the sea

I have to admit, I was really nervous leading into today. A few months back, we planned to take my mom to Ocean City, one of her all-time...

I've learned to lose you, can't afford to

Sara

Sep 8, 2019
1 min

Grief

I've learned to lose you, can't afford to

Today was the first time in so long my mom looked at me and seemed to connect with my being there. She even nodded a few times at...

People living on twenty four hour clocks, but we’re on a ride, yes we’re on a ride, we’re on a ride

Sara

Apr 12, 2019
2 min

Grief

People living on twenty four hour clocks, but we’re on a ride, yes we’re on a ride, we’re on a ride

#realtalk: It’s been a rough week coming back after the #alzforum for a whole lot of reasons, but a very big one I’m just finally able to...

Sara

Mar 30, 2019
1 min

Grief

The District Sleeps Along Tonight

I spent the day enjoying the nation’s capital before the #alzheimers advocacy forum officially begins tomorrow. As I laid on the stone...

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